Further information provided by other websites and organizations for additional resources about Phelan-McDermid syndrome can be found below.
PMSF (Phelan-McDermid Syndrome Foundation)
PMSF has a mission to improve the quality of life of people affected by Phelan-McDermid syndrome worldwide by providing family support, accelerating research, and raising awareness.
More information can be found at www.PMSF.org
ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world, according to their website. The service is supported by the National Institutes of Health.
You can find our entry at: ClinicalTrials.gov.
PMSF will administer funds to support families for their participation in this Phelan-McDermid syndrome study.
In order to ensure that we’re able to support future families in this trial, it may not be possible to approve 100% of your estimated expenses, but we will do our best to meet your needs. Thank you for your understanding and dedication to advancing research for Phelan-McDermid syndrome.